Jeremy @ 20 weeks

Jeremy @ 20 weeks
At 20 weeks we found out about CDH on April 19 2011

Thursday, January 26, 2012

Thank you to all the followers and vistors to Jeremy's CDH blog

Just want to say thank you to everyone. For the sweet comments when Jeremy passed and we had to figure out the funeral. Also just for all the people that take the time to look at Jeremy's blog. It really means alot to me and our family. I am sure Jeremy in heaven really likes it too. I am doing this blog to just create more awareness about these birth defects and also share our story on it.


Wanting to do a fundraiser in the memory of Jeremy

I have been thinking I really would like to do a fundraiser in memory of my son Jeremy. I am thinking in august sometime. It would be around when he was born and passed. I have some ideas of what I would like to do. I just want any money donated to go to the research of CDH. I am going to also look in to the other birth defect to EA/TEF. So keep a look out there might be something on the blog too for donations. I am also looking into that. Well thank you for reading and keeping up with Jeremy's story. I just hope I can make a difference so other parents don't have to go through this or that this blog helps them too.


Friday, January 20, 2012

Poems that I found online about a child dying

You are a Precious Child
Created out of love,
a blessing from above.
I've adored you from the start,
and your little footprints
touched my heart.
A single teardrop represents the
millions I have cried
My life never the same since you died.
I wish you could have stayed
longer with me,
I'd watch you grow into
all you could be.
Although we are apart,
Your are Always in My Heart.
I dream of a joyful time when
we will be reunited once again.
Thoughts of you make me smile.
You will always be My Forever Child™
 ~© Susan Mosquera~

Babies are angels that fly to earth, their wings disappear at the time of their birth. One look in their eyes and were never the same, it's a little one we created and gave a name. Little eyes open, an everlasting bond, as we hold him while he slips onto the beyond. A bond we now have that will never sever, as our baby is now an Angel that we will love forever.

"These are my footprints,
so perfect and so small.
These tiny footprints
never touched the ground at all.
Not one tiny footprint,
for now I have wings.
These tiny footprints were meant
for other things.
You will hear my tiny footprints,
in the patter of the rain.
Gentle drops like angel's tears,
of joy and not from pain.
You will see my tiny footprints,
in each butterflies' lazy dance.
I'll let you know I'm with you,
if you just give me the chance.
You will see my tiny footprints,
in the rustle of the leaves.
I will whisper names into the wind,
and call each one that grieves.
Most of all, these tiny footprints,
are found on Mommy and Daddy's hearts.
'Cause even though I'm gone now,
We'll never truly part."

Will I know my baby when we meet again?
Will he have grown up, not be the infant that died in my arms?
Will I recognize him, be able to find him among so many others?
Or will he be a stranger to me, not knowing who I am,
or me knowing him?

Do babies grow up in heaven?
He never got his first tooth, or said his first words.
No first shoes, no Santa, no first birthday cake.
Will my son still be a baby when we meet again?

Do babies grow up in heaven?
Who sings him precious lullabies?
Who holds him close and kisses him everyday?
Who tells him constantly that they love him?

Do babies grow up in heaven?
When we next meet, will he know me?
Will he want to know me?
Will he be my son who died at three months, or a man, fully grown?
Will I have the joy of being a mother to my son for all eternity?

Do babies grow up in heaven?
Will I be able to hold him, love him, sing lullabies to him?
Will I be able to hold his tiny hand, or will it be a man's hand?
Will I ever have the joy that only holding my son can bring?
I need to know! In heaven, is my baby still a baby?

I called St. Louis back

I called the other day. (SSM Cardinal Glennon Children's Medical Center ) The doctor Dr. Yang would like to do a research study on CDH babies. They would like to use Jeremy's medical information. I think it would be a good idea. So they will send me a copy of the scientific article when it is done. They would like to find better ways to take care of CDH babies and to understand them.

I love you and miss you Jeremy. 

Sunday, January 15, 2012

Recieved a call a few days ago

The hospital in St. Louis SSM Cardinal Glennon Children's Medical Center would like to do a study on Jeremy. So they left me a message to call back and to see if I want to be in the research. So I will call monday and see what it includes. I would like to find out why this happened to Jeremy. Also what can prevent these birth defects.